Still fighting to find a name for this and debating moving it to my website too. BUT for now it will just stay here on my Facebook. It’s more of an update for friends at this point. I didn’t like calling it “Denied by Disability” because that seemed negative. So I’m looking for a new name.
First I’ll start with this is the 9th post of this new adventure in what I can only call blogging. Of which I said I’d never do. Never say never…
Ok really late post. It’s almost midnight and insomnia has me by the man candies. I’ve made a LOT of progress in the last two days. I’m also torn up, torn down, beat to crap and feel like I just got hit by a train. Mentally I’m completely drained. Physically I’m in massive pain, tremors have been bad and hands aren’t working that well, for that matter my entire right side is currently giving me problems. BUT… I’m pushing forward as hard as I can!
Life has been mostly phone calls, emails and my brain wearing out within an hour or two, this stuff is so extremely stressful to someone who can’t always process information right it takes a hard toll on me mentally and even physically. These days I can only go for that hour or two before a significant rest is required.
SSI / SSDI / Disability…. what ever they call it for someone like me. I contacted the Parkinson’s Foundation and they referred me to Allsup. Both the Parkinson’s Foundation and the company itself made it very clear they have a 97% success rate. I talked to a few people. Answered some questions and signed some papers. They are reviewing my case and are getting back to me. That was yesterday later in the afternoon. Everything seemed good and it appears as if I might have someone to help with this confusing stuff. I’d love someone to start doing the heavy lifting (mentally) for me because I’m fried from all of this…
Doctors… the Parkinson’s Foundation also suggested that I find a Parkinson’s specialist not just a neurologist so I’m currently using my GP and insurance to locate that person. Wouldn’t hurt to get a second opinion on what the first guy is doing anyway right!?!?
My doc is a bit concerned. My stress and anxiety are out of control. I’m not eating or sleeping right. I’ve lost weight. I’m not getting proper therapy and or exercise. So I’ve got an in office appointment for a physical. Here’s hoping if any further problems are found, they aren’t significant.
I’ve made arrangements with my GP to send out, from what I understand, a social worker / nurse of sorts. She’s gonna chat with me my current living situation and from what I’m told see if there’s anything further that can be done for me… what that means I have no idea but you’ll find out when I do.
Now some general stuff. Making progress preparing for winter. It’s rough living in an RV when winters in Oregon can get fairly bad. Last year wasn’t to bad, let’s hope this year isn’t either. Lots and lots and lots of stuff to still get done just around here not counting the disability stuff, income stuff, random other issues. So feeling overwhelmed but taking it one day, one step at a time.
There’s more but it’s late, I need sleep and I’ll post another nice informational “blog” entry here in a few hours later this afternoon!
So let’s end this with what have I been up to other then the icky stuff… Well the normal things. Errands with assistance of course. grocery store, pharmacy, propane, etc. I get the food stamps and energy assistance plus my state provided health insurance pays for 99% of my medical bills including meds (MEDICAL ONLY NO INCOME). So that’s the assistance I found right away last year and haven’t found anything since. Ok back to the good stuff. Got a lot of organizing an cleaning done after my nap this afternoon, just finished that up. The middle of the day was phone calls and some minor design / art work. The beginning of the day was weed eating! Yes I can still get out there on good days and with some extra meds. It doesn’t last long but usually enough to help out the owner of the property since I can’t pay him rent 😕 Such wonderful people! 🧡 His son / my good friend also helps with info, rides, assistance around the house when I need it and any other thing I ask. They give dinner most evenings and he’s paid my cell phone bill for almost two years now without one negative word. Honestly makes me want to cry but again, I’m blessed in many ways. Just screwed in a couple other 🙄. I try to help them when I can but I’m much more of a pain then they let on. I’m very blessed and grateful for having these people in my life. Got in two naps between those three things and naps yesterday so it was two good days. Even though it was tough and I feel really shabby right now. Totally worth it, I feel accomplished and good about myself. I’m sure there’s more but lastly and most importantly (to me) I got to play some PS4. Using a controller / keyboard can be difficult at times but very doable. With all that’s been going on I haven’t been able to bring myself to play. I know it doesn’t seem important but along with art and crafty stuff, gaming is also a HUGE HUGE stress release. It greatly helps my anxiety. It let’s my mind escape this box my body is trapped in and have wonderful adventures with fantastic people. My buddy I’ll just call by his gaming name “UB” is a really awesome person that forces me to see the positive and continually pushes me to keep going. It truly means the world to me to have people like that in my life. Friends in real life, from high school, online and gaming have given me the strength to keep going. Not to be negative but without them, you, the donations I can assure everyone I wouldn’t be here any longer and for I’m ETERNALLY GREATFUL!!! 🥰
Well since it’s now tomorrow and I’m probably rambling, I hope you all have a great day and be safe out there. The world has gone crazy… again be safe and much loves 🧡🖤🧡🥴 be back soon for another installment of “One Life to Live” oh wait please don’t sue me. “I’ll be back” dang it… again don’t sue me. I give up, just gonna say see ya soon!
#parkinsonsdisease